Saturday, July 23, 2011

Frustration Personified

I've been having more problems with this site than with anything else I've done!  Now I have two sites.  Have to figure out how to get rid of one of them.    I'm typing and I'm hoping my settings will take care of the type I've chosen and everything else on my list.  In short, my mind is frazzled and I'm supposed to be computer literate!  There is no one to call either!  Maybe I'll change carriers.  Ask my 11 year old friend who she uses.  Has to be a better way.  I mean, I can't even log on properly.  I've bookmarked it in my favorites have a card with all the info right at hand and I still have problems!  Help someone, anyone!

OK....I was going to get new canvases for a series of paintings I want to do.  It's early enough so if I can calm down enough, I'll walk over...doesn't look too hot.  I told you....aging if for the birds!  My poor daughter can't even access the site, I'm trying everything to get it to her.  Most people have logged on and I thank you for our feedback on my e mail address.  Who knows if any comments will even come up on the site.  Shush Natasha.....it'll get better.  Have to keep telling myself that or I'll explode.

Getting back to how much fun it can be to look into the future, I had dinner with my son and had a good chuckle over the wheel chair.  It was the first time in a while that we really spoke about the future and how I see myself at this point in time.  "We're not walking all over San Francisco," he said!  The places we can go to and the public transportation we can use eliminates the  use of the wheel chair...that big fat warning light in the corner of the room.  Keep fighting, I tell myself.  My son was on target, we will go one day at a time.  The only concession we made was that I must be told if I become too hyper or am stupid enough to be so stubborn to the point of hurting myself.  Me, hurt myself!  Don't be ridiculous, I'll fall on my face unconscious before that.  Hey, I can wear pain patches to ease the cramping in the calves due to neuropathy.

Now that's a fancy word.  Took some time to pronounce it properly and about 2 seconds to hate it!  Do  nerves wear out?  Do they sigh with each movement wishing they could sleep more?  Do they complain to one another?  Do they tell the spinal disks to move just a bit so I feel a jolt of pain?  Is that how my body gets even when I think I'm 20.  Revenge....they make me feel like I'm 120!  Know what they are?  Thin little strands going to every part of your body.  They send messages.....Guess I'm not getting them loud and clear, maybe there's a special hearing aid for that.  Everyone I know has back problems due to stenosis or osteoporosis.  See...I know these fancy words.  Osteo, means bone.  In short, as you age, your spinal column ages with you.  You don't see it, but you sure feel it complain.  A lot of back surgery in my group of friends.  Knee surgery too.  My cousin was 83 when she had both knees taken care of. Me?  Never.  I was on Prednisone and it ate away at my hip joints.  That was enough.  I'm a bionic woman who sets off alarms at the airport!

Maybe I'll add to this later, if I can find myself again..  I'm off to the art store, have to use up all this excess energy.  Sure hope my daughter can find her way here.

Thursday, July 21, 2011

Here I am..challenged as usual.

I was never going to do a "Blog!"  Didn't even know what it was until my 11 year old friend gave me the e mail for hers and I felt suddenly aghast.  An 11 year old with her own Blog!  Hell, in my 70's I'm considered a computer maven, so why not start on for myself.  I had no reason  until today.

I am energetic, love and live life to the fullest that I can and like most "senior citizens" have ailments I didn't want, wouldn't even wish them on my worst enemies, and cope with on a moment by moment existence.  If you go to sclero.org, you will see some of my writings on Scleroderma and Sjogren's..what did she say? Never heard of them....It's OK, just realize they are autoimmune diseases with no cure and which attract other autoimmune diseases to join in the fun of tormenting  your body to the fullest.  But life goes on, as it usually does.  Just think, for those  of you with similar autoimmune stuff going on, I've lived a life time with these and I'm still here!  Picture a medieval battle field with a battered and bruised knight (lavender feather, of course) pointed her damaged lance at the fresh and ready challenger (midnight blue feather, of course) staring at one another wondering if the next thrust is even worth it.  It is.  My lance may be bent and tarnished, but that other feathered creature isn't going to beat me on this battle field.

The jolt I received this past week has made that battle field a bit uneven.  It  has forced me to readjust my life once more so I can even that playing field for the future, no matter how many years I have left to play.  Remember, I said I was energetic and loved walking which I do every day....I was advised to use a wheel chair when my daughter comes in to visit this August.  She wants to "walk" San Francisco!  How the hell do you "walk" SF?  Which area are you walking?  And, oh, yes, we are going to Alcatraz  the same day.  Go on a ferry with a wheel chair!  Be pushed around like some really handicapped person!  "Yes," says my doctor...."you will wear  yourself out otherwise and won't be able to enjoy the other days she's in."

OK...how do you cope with that kind of news!  I'm strong, I'm able to conquer the world (at least my small section of it)  Yes I get breathless walking to much so I should take my portable oxygen with me.  Oxygen, did she say?  Yes, I use it at night only.  Anyhow, this blog will tell  you how I cope with this new adventure in my already adventure filled life.  Only this one will involved travel and fun.  But a wheel chair?

Any opening thought out there?